The Norwegian Hip Fracture Register / Nasjonalt Hoftebruddregister
DOI:
https://doi.org/10.5324/nje.v16i2.190Abstract
Background: Every year 9000 patients in Norway are operated due to hip fractures. A hip fracture is a diagnosis associated with high mortality and morbidity. The patient population is increasing and large resources are used in the treatment of these patients. There is no consensus in Norway stating the preferred method of treatment. The Norwegian Hip Fracture Register was founded at the National Arthroplasty Register 1. January 2005.
Material and methods: We have established contacts at every hospital in Norway that perform surgery for hip fractures. After surgery, the surgeon fills in a standardized form, which is sent to the register once a month. On the form there are both patient- and procedure-related questions. To ensure accurate information on the implants, the surgeons use stickers with catalogue numbers supplied by the manufacturers. After four and twelve months a questionnaire is sent to each patient. Among other questions we used the Norwegian translation of the EuroQol- 5D (EQ-5D) which is a non-disease-specific instrument for describing and valuing health-related quality of life. All the results are stored in our database. The information is linked to the Norwegian Registry of Vital Statistics by use of the unique identification number assigned for each resident of Norway.
Results: After one year of registration 100% of the hospitals are reporting to the register. 51% of the patients have answered the questionnaire. We have included 5668 primary operated patients (mean age 80.3 years and 72.5% females) and 500 revisions. So far no difference in mortality between patients treated with a screw fixation and patients treated with a hemiarthroplasty has been found.
Discussion: With longer follow-up we will be able to do survival analyses on the different implants. Using the EQ-5D we will also look for differences in quality of life after four and twelve months. We have already planned several articles and publications.
Bakgrunn: Hvert år opereres det i Norge ca. 9000 pasienter for hoftebrudd. Hoftebrudd er en diagnose assosiert med høy mortalitet og morbiditet. Det er ingen konsensus i Norge om hvordan hoftebrudd, og spesielt de dislokerte lårhalsbruddene, skal opereres. Nasjonalt Hoftebruddregister ble 01.01.05 opprettet ved Nasjonalt Kompetansesenter for Leddproteser for å kvalitetssikre behandlingen av pasienter med hoftebrudd.
Materiale og metode: Det er opprettet kontaktpersoner til registeret ved alle sykehus hvor det opereres hoftebrudd. Etter hver operasjon fyller operatør ut et operasjonsskjema som sendes til registeret. I tillegg til pasientdata og opplysninger om operasjonen som er utført, blir alle implantater registrert så nøyaktig som mulig, helst ved hjelp av katalognummer. Et oppfølgingsskjema sendes til alle registrerte pasienter 4 og 12 måneder etter primæroperasjonen. Dette skjemaet består blant annet av den norske utgaven av EuroQol-5D.
Resultater: Etter 1 års registrering har vi 100% oppslutning fra sykehusene og 51% svarprosent på pasientspørreskjema. Vi har inkludert 5668 primæropererte pasienter (gjennomsnittsalder 80,3 år og 72,5% kvinner) og har registrert 500 reoperasjoner.
Diskusjon: Databasen vil kunne kobles opp mot andre registre som for eksempel hofteproteseregisteret og vil kunne bidra til økt kunnskap om hoftebruddpasientene. Vi vil undersøke overlevelse av implantater og pasienter samt funksjonsnivå hos pasienter etter ulike behandlingsmetoder. Databasen fungerer tilfredsstillende og vi regner med flere publikasjoner i løpet av de første årene
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