Realizing the potentials of a National Spinal Cord Injury Registry – 10 years of experiences

Authors

  • Annette Halvorsen Department of Medical Quality Registries, St. Olavs hospital, Trondheim University Hospital, Norway, Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries, St. Olavs hospital, Trondheim University Hospital, Norway
  • Ann Louise Pettersen Department of Medical Quality Registries, St. Olavs hospital, Trondheim University Hospital, Norway
  • Sara Rise Langlo Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries, St. Olavs hospital, Trondheim University Hospital, Norway
  • Horn Siv Anita Department of Medicine and Health Care, Sunnaas Rehabilitation Hospital, Nesodden, Norway
  • Rekand Tiina Department of Neurology, Haukeland University Hospital, Bergen, Norway, Institute for Clinical Neuroscience and Physiology, The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

DOI:

https://doi.org/10.5324/nje.v31i1-2.5612

Abstract

The Norwegian Spinal Cord Injury Registry is a national quality registry that just celebrated its 10-year anniversary. The registry contributes to quality improvement in spinal cord injury care in Norway and other Nordic countries. The continuous improvement in clinical practice goes hand-in-hand with the further registry development. Data from the registry are furthermore used in different kinds of research projects. This article aims to provide an overview of how the Norwegian Spinal Cord Injury Registry was established, to share our experiences, insights, lessons learned during its development and ten years in operation, and to highlight its potential.

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Published

2023-10-20

How to Cite

Halvorsen, . A. ., Pettersen, A. L. ., Langlo, S. R. ., Siv Anita, . H., & Tiina, . R. (2023). Realizing the potentials of a National Spinal Cord Injury Registry – 10 years of experiences. Norsk Epidemiologi, 31(1-2). https://doi.org/10.5324/nje.v31i1-2.5612