TY - JOUR AU - Olsen, Jørn PY - 2017/10/26 Y2 - 2024/03/19 TI - Løbende nationale reproduktionsregistre og ad hoc data JF - Norsk Epidemiologi JA - Nor J Epidemiol VL - 27 IS - 1-2 SE - DO - 10.5324/nje.v27i1-2.2400 UR - https://www.ntnu.no/ojs/index.php/norepid/article/view/2400 SP - AB - ENGLISH SUMMARY<br />Olsen J. National registration in human reproduction and research oriented ad hoc data. Nor J<br />Epidemiol 2017; 27 (1-2): 27-31.<br />The Nordic countries have a long tradition for collecting and storing of data in reproductive health. These<br />registers cover the entire population and focus on health outcomes. They have gradually been made available<br />for research and if supplemented with data on potential risk factors in reproductive health, they provide<br />a strong basis for research in potential causes of disease in the reproductive system. Several pregnany/birth<br />cohorts have been successful in providing important information in preventive medicine. The most important<br />of these are the Norwegian birth cohort (MoBa) and the Danish National Birth Cohort (DNBC). Both<br />include about 100,000 newborns. They are based on the rationale that many diseases have causes that start<br />operating in fetal life – fetal programming of diseases – even diseases that manifest themselves later in life<br />(adult diseases). Examples of historic and more recent findings are presented in the following text.<br />Risk of disclosure of personal data is of concern. We have not had examples of such unwanted disclosure<br />and we want to keep this achievement. We clearly have to do many things different and better in the future.<br />Fortunately, technical solutions are available and promising.<br />The registers and the ad hoc data sources have given the Nordic epidemiologists a leading position in<br />reproductive health. To keep that position, we need to plan new cohorts and train more people. If we do that<br />we will be able to continue our collaboration with colleagues all over the world. ER -