Guest editors: Jennifer R. Harris, Isabelle Budin-Ljøsne and Anita Haugan
Table of Contents
Articles
| Innhold | |
| - - |
| Referees | |
| - - |
| Biobanking: from vision to reality | |
| Jennifer R. Harris, Anita Haugan, Isabelle Budin-Ljøsne |
| From Biobanks for health to Biobank Norway | |
| Camilla Stoltenberg, Isabelle Budin-Ljøsne, Jennifer R. Harris, Kristian Hveem |
| Biobanks in Norway – funding by the Research Council | |
| Berit Johne |
| How to kickstart a national biobanking infrastructure – experiences and prospects of BBMRI-NL | |
| M. Brandsma, F. Baas, P.I.W. de Bakker, E.P. Beem, D.I. Boomsma, J. Bovenberg, B. Bueno-de-Mesquita, C. van Duijn, L.A. Kiemeney, O. Klungel, P.W. de Leeuw, F.E. van Leeuwen, J. Ridder-Numan, R.P. Stolk, P.E. Slagboom, M. Swertz, C. Wijmenga, G.J.B. van Ommen |
| Adapting research to the 21st century – the Swedish Biobank Register | |
| L. Norlin, M. Fransson, S. Eaker, G. Elinder, J.-E. Litton |
| ELSI challenges and strategies of national biobank infrastructures | |
| Isabelle Budin-Ljøsne, Jennifer R. Harris, Jane Kaye, Bartha Maria Knoppers, Anne Marie Tassé |
| Danish biobank legislation, a simple approach? | |
| Kirsten Ohm Kyvik |
| Newborn screening programmes: Emerging biobanks? | |
| B.M. Knoppers, D. Avard, K. Sénécal |
| Embedding biobanks as tools for personalised medicine | |
| Jane Kaye |
| The Regional Research Biobank of Central Norway – “One biobank, many collections” | |
| Jostein Halgunset, Øyvind L. Mikkelsen, Haakon Skogseth |
| Scientific scope of integrating research activities in the Janus Serum Bank and Cancer Registry of Norway | |
| Hilde Langseth, Randi Gislefoss, Jan Ivar Martinsen, Steinar Tretli |
| How can clinical biobanks and patient information be adapted for research – Establishing a hospital based data warehouse solution | |
| Wenche Reed, Sissel Jor, Roger Bjugn |
| Managing incidental findings in population based biobank research | |
| Berge Solberg, Kristin Solum Steinsbekk |
| Navigating the perfect [data] storm | |
| M.J. Murtagh, G.A. Thorisson, S.E. Wallace, J. Kaye, I. Demir, I. Fortier, J.R. Harris, D. Cox, M. Deschênes, P. Laflamme, V. Ferretti, N.A. Sheehan, T.J. Hudson, A. Cambon Thomsen, R.P. Stolk, B.M. Knoppers, A.J. Brookes, P.R. Burton |
| Size matters: the ethical, legal, and social issues surrounding large-scale genetic biobank initiatives | |
| Klaus Lindgaard Hoeyer |
| Facilitating collaborative research: Implementing a platform supporting data harmonization and pooling | |
| Dany Doiron, Parminder Raina, Parminder Raina, François L’Heureux, Isabel Fortier |
| Biospecimen quality program in the biobank of the Norwegian Institute of Public Health | |
| Liv Paltiel, Jeanette Aarem, Siri Bækken, Nina K. Stensrud, Kari Harbak |
| DataSHIELD – shared individual-level analysis without sharing the data: a biostatistical perspective | |
| E.M. Jones, N.A. Sheehan, N. Masca, S.E. Wallace, M.J. Murtagh, P.R. Burton |
| Assessing the impact of nicotine dependence genes on the risk of facial clefts: An example of the use of national registry and biobank data | |
| Astanand Jugessur, Håkon K. Gjessing, Allen J. Wilcox, Truc Trung Nguyen, Roy M. Nilsen, Jeffrey C. Murray, Rolv T. Lie |
| Using offspring-parent triads to study complex traits: A tutorial based on orofacial clefts | |
| Astanand Jugessur, Øivind Skare, Jennifer Ruth Harris, Rolv Terje Lie, Håkon Kristian Gjessing |
| Peeking into the black box of privacy – biobank participants on the importance of recognition | |
| Lars Øystein Ursin, Kristin Solum Steinsbekk |
This work is licensed under a Creative Commons Attribution 3.0 License.
ISSN: 0803-2491